Word on the street is that June is Myasthenia Gravis Awareness Month.
So, I did some research on it (my full-time temporary summer job has trained me well in my three days of work) to get verification and whatnot, since my job has made me suspicious of everything online that claims to be true. I found out some interesting things. First, I learned that the Duke doctor that my doctor speaks with a lot and speaks highly of is actually “a member of the Medical/Scientific Advisory Board of the Myasthenia Gravis Foundation of America…[and] internationally known as a MG clinical and research leader” (“The M.G. Rally”). How’s that for an MLA citation?
Anyways, the rumors about MG Awareness month are true. In honor of this national observation, that I guarantee no one knows about, I’m going to leave bunches of info throughout this month on the loveliness that is Myasthenia. And, random facts that can actually be interesting if you’re not really into the technical crap.
Apparently teal is the official color for Myasthenia Gravis Awareness. That’s how much I know about this stuff. Hell, I didn’t even know that a Myasthenia Awareness Month existed. I don’t really think I was ever that interested in getting caught up in that, but I’d definitely like to start getting involved. I really want to get one of those LiveStrong Bracelets, but MG style (aka make my own). Myasthenia is a big part of my life, and I’m not ashamed anymore. Frustrated at times, but not ashamed. It’s a part of me.
June 12, 2008 at 1:03 am
Thanks for visiting my blog. I’ve had MG for over 5 years now. Every June is MG awareness month. You can join a support group (nope, you don’t have to go to meetings!) and get info from them. I’ll be reading your blog and how MG has affected you.
Great news about your doctor! Have you had a thymectomy? My doc is on the MG Foundation Board too and is the MDA director for Tampa and St. Pete Florida.
Take care! I’ll be back to read more.