I got everything I asked for. I asked and my doctor offered me ways to improve my symptoms. They are as follows:
- 5-10mg burst of Prednisone
- Plasmapheresis
- Add on/gradually switch to rituximab
- Cyclosporin
I vote that 1 and 4 are out of the picture. So, there leaves me exactly in the position that I wanted to be in. Except. Except, I’m much happier right now than I ever anticipated. I figured that, were these options presented, I could just get it over with this summer and be perfect for the fall. But, I’m at a state where I don’t want to put my life on hold again and only be able to wash my hair in the sink for the next month. I don’t want to give up my weekends of going to take pictures. I love doing that and I haven’t been this happy since probably before I got diagnosed. Or, it seems that way at least. I don’t want medication to throw me for another whirlwind. I’m not ready to do that again. Plus, I’m just starting to get my stroke back. Swimming is progressing and I don’t want to lose everything I’ve built up (though, admittedly, I don’t feel like it’s much).
I need to keep having fun. I have loved this summer and what it has had to offer so far. What do you do when you everything you have ever asked for and truly desired is in your reach, but suddenly aren’t so sure if you should grasp it?
