About “The Girl Who Loved…”

When I was 17, I was diagnosed with Myasthenia Gravis, an auto-immune neuromuscular disease that causes muscle weakness. As a result, my appearance has been temporarily altered- I can’t smile the way I used to, sometimes my eyes droop. I’ve struggled with dealing with how other people see me, but I’m slowly coming to terms with it all. In a nutshell, I’ve been through a lot and I’m still trying to sort it all out. To be honest, I’m not too sure why I just wrote that, seeing as I don’t like to talk about all I’ve been through. And, I’d like to say that I am just like everyone else my age, but I don’t always feel that way. That’s not to say that I pity myself, because I don’t. At least not intentionally, though it might come off that way. I’m just trying to figure out how to live with an old person disease that I don’t like to talk about because I believe it draws unnecessary (and, often negative) attention. All I want is to be known for who I am, not for the disease that I have.

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