About “The Girl Who Loved…”

When I was 17, I was diagnosed with Myasthenia Gravis, an auto-immune neuromuscular disease that causes muscle weakness. As a result, my appearance has been temporarily altered- I can’t smile the way I used to, sometimes my eyes droop. I’ve struggled with how other people see me, but I’m slowly coming to terms with it all. I’ve been through a lot and I’m still trying to sort it all out. I’m not too sure why I just wrote that, seeing as I don’t like to boast about it. I’d like to say that I am just like everyone else my age, but I don’t always feel that way. That’s not to say that I pity myself, because I don’t. At least not intentionally. It might come off that way, though. I’m trying to figure out how to live with an old person disease, but I don’t usually like talking about that either because I feel that it draws unnecessary (and usually what I perceive as negative) attention. I want to be known for who I am, not the disease that I have.

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